Cooking On Gas

Sydney Opera House from The Rocks
Sydney Opera House from The Rocks

There has been little time to post on here and, actually, very little to talk about vis-a-vis the Fibromyalgia.

The adrenalin has been doing a great job of knocking the stuffing out of any Fibro symptoms. Up until last night, I had been absolutely fine. There was something of a hiccup yesterday, though. We had taken my sister to do a few errands then she wanted to go to Semaphore which is on the coast, to the west of Adelaide city centre. When we returned after dropping my sister off, I became extremely unwell. It probably wasn’t due to the Fibro but, rather, to something I ate or drank.

I have to admit that I am dreading our farewell on Tuesday. Apart from the emotional consequences of the parting, I am worried that there is likely to be a huge drop in my adrenalin levels leading to a surge of Fibro symptoms. Having been so fatigued when we returned from our holiday in Turkey, although, admittedly, I also had a chest infection, makes me feel a bit frightened of how I shall cope with our return journey to the UK. I need to keep thinking of pleasant things to take my mind from pondering what might happen.

By the way, are you wondering why there is a photograph of Sydney Opera House at the head of a post about my time in Adelaide? Well, it’s because Peter and I flew to Sydney for the day on Wednesday, to see more of my family. During the afternoon, one of my cousins took us around Sydney on a mini sightseeing tour during which I took the photo.


Hmm… Things Have Been Changing Slightly

Yesterday, being Wednesday, was the day that I had to increase my dosage of Gabapentin. I am working my way up to taking three capsules three times a day. Oh gosh, that’s a lot of those large lumps to swallow! I am having trouble remembering to take the afternoon dose and when I forget it throws everything else into disarray because of other medication that I am on. Hmph.

Anyway, yesterday I had to increase the morning dose of Gabapentin to two capsules. Having already increased the evening and afternoon doses to that level, I didn’t anticipate any problems. However, soon after taking my morning medication, I became suddenly very tired, which is not unusual. What is unusual is that I also felt extremely nauseous. I didn’t really feel as though I was going to vomit, although I was only a hair’s breadth away from feeling like it but, my goodness, I felt ill. I had to collapse into bed… immediately. The trouble was that I had telephoned a friend just a few minutes before to say I would be arriving shortly so I had to ring her to say that plan had been aborted. Luckily, Peter was around and brought my phone to me so that I only needed to press a couple of buttons otherwise I don’t think I would have managed to ring.

I collapsed into the bed and fell asleep immediately. I slept for two and a half hours or more. When I awoke I was so pleased that the feeling of nausea and the exhaustion had passed. That is another way in which I am lucky with my Fibromyalgia at the moment: when I sleep, when I waken I do refreshed. Many sufferers don’t feel refreshed when they have slept. That is not nice. As I say, I am lucky.

Another change that has taken place is that I am starting to feel hints of pain in some of the well-known tender points in my body. Again, I am lucky as what I am feeling is just a touch of sensation rather than actual pain. It’s more a case of Fibro saying “Don’t worry, I haven’t forgotten you”, followed by an evil laugh.

What I have just written probably sounds like the words of a madwoman but allow me to explain. The Fibromyalgia feels to me like an entity, almost a person, with its own identity, its own character: so to me it makes perfect sense that it would talk. If that makes me ‘not right in the head’ then so be it – that explanation works for me. It helps me to deal with the reality of living with Fibromyalgia and the possible things it could do to me, and with me, in the future. So what, if it’s weird? I don’t actually care! It doesn’t matter and isn’t up to others to judge me: I’m the one having to cope with my Fibromyalgia.

Sorry. I was becoming a little belligerent there.

The changes in pain, or ‘sensation’, probably don’t seem like much to anyone else and, I suppose, in themselves they are not much, but it’s what they may presage that is so frightening. I don’t like pain. I don’t like being in pain. I’m a pathetic weed when it comes to pain. How will I cope if Little Miss Fibro decides to throw the Pain Book at me?

I’m stopping now as I don’t want to think about it any more.