It Makes Me Sick!

Some very special people

FPR has been in a sticky situation recently: he has been stuck on the Macbook, which has meant that I couldn’t get near it to type a post on here. I know I could have typed it on my iPad, but I prefer using the Macbook. Silly, isn’t it? Wotevva! That is why it’s been a while since my last post. (As I typed that last sentence I could hear The Last Post playing in my head!!!)

OK. Let’s get on to the business in hand…

Back in early September, I mentioned in this post having felt nauseous. This is something that happens occasionally. I don’t really remember it being an issue since I tried taking Amitriptyline back in 2015. The Amitriptyline caused me to suffer dreadful nausea and vomiting. Since that time, I have suffered bouts of nausea occasionally. However, those occasions are becoming more frequent and, consequently, more troublesome. I hadn’t attributed them to any particular cause but rather just viewed them as unpleasant things that happened once in a while. Recently, though, I have been wondering if there is an underlying cause for the nausea so I decided to check whether it is a recognised symptom of Fibromyalgia. No prizes for guessing what I discovered.

I can’t remember, now, which website I read about nausea being a symptom of Fibro but, because I wanted to add a link about nausea in this post, I did a quick search online and this site came up. The piece I read last week didn’t mention nausea as being a common symptom of Fibro so it was something of a revelation to read it in this post. This is probably a good time to remind you that I tend not to read about Fibromyalgia. I did so when I was first diagnosed but found the information so depressing that I decided not to read any more, unless I was looking for something specific. I was depressed enough, without adding lots of information about symptoms I didn’t have, but  which which might develop in the future.

The article I read the other day mentioned that sufferers of fibro-related nausea should consult their doctor about it. I don’t want to bother Dr. Azeer at the moment: instead, I shall see how things go. If the nausea keeps putting in an appearance and becomes a particular nuisance I may need to review that decision but, for the moment, I shall leave him in peace.


The Pleasure And The Pain

Sunset at Stepping Hill Hospital, 29 August 2017

Regular readers of this blog will know that I am very fortunate as pain is not a large part of my fibromyalgia. I hope new readers will accept that fibro isn’t always all about pain.

FPR’s mother has recently been sampling the delights of the NHS, as delivered by Stepping Hill Hospital, which is to the south of Stockport in Cheshire. We live on the northern fringes of Greater Manchester which means there are quite a few miles, and an awful lot of traffic between there and here! Even though I love driving my car and find it less tiring to drive than my previous one, sitting in traffic is no joy.

On Tuesday of this week, FPR and I set off with Lettie, m-i-l’s best-ever black labrador, on a hospital visit. Having made an early start, we had decided, for various reasons, that we would return home before the rush hour. There were a couple of tasks that I was hoping to complete for m-i-l that day which was why we set off when we did. Yes, well, the best laid plans and all that. I think it fair to say that our day did not go as planned – it felt rather like swimming in custard with an anchor tied to the ankles.

Due to a particular problem that cropped up, and a poor decision made by me, we ended up getting home much later than anticipated – but at least I had the pleasure of having completed everything I had hoped to! Oh my goodness, though, have I suffered for it!

On Wednesday, I had a quiet day. I knew I needed to be careful having had such a full-on day on Tuesday and I was feeling a bit tired. No, that’s not quite it. I felt a bit ‘squashy’. By that I mean that my brain was foggy, and my body felt like the physical equivalent of that, resulting in an overall feeling of squashy-ness. I gently plodded through the day, doing a bit of knitting, a bit of reading, spending a bit of time on my iPad – nothing too strenuous – and feeling very pleased with myself. Oops, that last bit was a mistake.

On Thursday I felt diabolical. I was so fatigued, I couldn’t even reach the dizzy heights of squashy-ness. I took things very easy. I did less knitting, no reading and less time on my iPad, but, even so, I felt worse as the day wore on. By the time 4.00pm came I knew I needed to go to bed. I usually avoid sleeping in bed during the day as I tend to recover my energy better after resting (with or without sleeping) in my recliner chair. However, sometimes that just isn’t enough, and that’s what was happening on Thursday: I wasn’t only feeling completely exhausted, I was feeling decidedly ill and nauseous – and it was getting worse with every step I took. Going up the stairs was quite interesting as I had to stop after every couple of steps.

I fell asleep almost as soon as my head hit the pillow. Zonk!

I awoke at around 6.00pm for three or four minutes and then zonked out again until about 7.00pm. I felt very much better than I had before I went to bed, but I still didn’t feel great. However, I did improve as the evening wore on until, by the time I was thinking of going to bed, I was wide awake and raring to go. I stayed up a bit longer, doing things that should prepare one for sleep, then retired to bed. I lay in bed, wide awake, for a couple of hours then gave up trying to sleep and got up again. I eventually fell asleep in my chair for an hour and a half or so and that was it until Friday night. Consequently, I wasn’t full of beans on Friday either. Unbelievably, the fatigue and exhaustion were still hanging over me yesterday!

I had the pleasure of doing everything I had planned to on Tuesday, but, my goodness, I have paid for it with the psychological pain of fatigue and exhaustion that I have suffered since.


Waves Are Not Only On The Beach


Waves aren’t only found on the beach, are they? If you’re like me, your hair has waves, but waves can also be abstract (thank you, FPR for giving me the word I was seeking), like a wave of sound. However, the waves I am talking about cannot be heard by anyone and only one person can feel them when they develop. They are waves of things like fatigue, nausea or hunger.

Just a few days ago, I was thinking about and enjoying the relative hiatus in my fatigue – tempting providence, some might say. I’m not sure if “tempting providence” would be the right description: I prefer to describe it as appreciating the good times. Anyway, within a few hours the good times had rolled.

It began on Saturday morning with me feeling quiet. I know that might seem like a strange word to describe how one is, but, really, it is the best word I can come up with to describe my whole demeanor. When I’m quiet, I don’t feel ill, but neither do I feel well; I don’t feel like doing anything but neither do I want to be doing nothing – it has to be a very low-key activity; I don’t feel like talking, or listening, but I don’t want silence – just some low background sound from something like the TV or radio. This “quiet” feeling lasted several hours then the waves began.

The first wave swept across me when I had popped upstairs for some reason. It was an “I don’t feel right” kind of wave. By the time I had gone back downstairs, the next wave was hitting: fatigue, followed quickly by a wave of hunger. As I hope you can tell, the waves were coming thick and fast. Hunger was followed by fatigue, which was being chased by nausea which, in turn, had hunger hard on its heels, but fatigue wasn’t letting hunger get away with that and quickly overtook it. It was a peculiar sensation having so many feelings sweeping over me. I really needed to sleep.

Nowadays, when fatigue hits, I have a sleep in my recliner chair. I don’t like going to bed during the day as I tend to sleep too deeply. Usually, sleeping in the chair in sufficient to refresh me. (I realise how lucky I am that my sleeping does tend to restore me.) However, when I tried to settle in my chair, I realised that it wasn’t where I needed to be. My body wanted to be lying down so, for the first time for many months, I lay on the sofa, but as soon as I lay down another wave of hunger hit, quickly followed by nausea. I knew that I needed to eat something, despite the sporadic waves of nausea. I grabbed a breakfast bar and managed to eat it before the nausea reappeared. As soon as I finished eating, I lay down again, falling asleep within a short time.

When I awoke, I felt much better and got through the rest of Saturday with no problem. Sunday was fairly good. On Monday morning, I had my regular post-breakfast nap but it lasted longer, and was deeper, than usual. I was awake in time to go to my regular Monday morning activity and was pretty much OK for the rest of the day – “OK” meaning I was able to do a little, then rest, then do some more and rest some more. I was more tired than usual in the evening and retired to bed earlier than I normally would. I slept well and got up around my usual time and had a cup of tea before my post-breakfast nap (P-BN). The only thing was that my P-BN was just the start: no sooner had I woken from it than I fell asleep. That sleep went on for longer than I would have liked as, by the time I came to, it was too late for me to go to Tuesday morning’s activity. That was disappointing as fatigue and other reasons have prevented me from attending several of those meetings.

I am due to go out this evening and am desperately hoping that, by taking things easy today, I shall be sufficiently hale and hearty to be able to go tonight. Fingers crossed!