Well, I Didn’t Know That!

April Sunrise

April Sunrise

You find me, today, still languishing in the confines of a Fibro Flare. My memory isn’t very reliable at the moment, but I think this is the first flare that I have suffered since the onset of the condition in August/September last year. As you may imagine, there is an awful lot that I didn’t know about Fibro Flares, and I don’t wish to contemplate how much more I have still to discover. So, what didn’t I know?

I didn’t know that I could be so fatigued that even thinking would take more effort than it was possible to muster. It takes a huge amount of effort to formulate thoughts or ideas, and, as for actually putting them into words…

I didn’t know that I could be so fatigued that I would feel desperate for Peter or A.N. Other to know instinctively what I wanted to say so as to avoid the need for me to run the equivalent of a marathon by trying to put it into words.

I didn’t know that making my mouth and vocal chords work in harmony to convey my meaning could require so much effort that I would be able to actually feel the energy pouring out of me and leaving a metaphorical mess on the floor.

I didn’t know that I would struggle to say a straightforward sentence because my mind couldn’t keep up with ordinary, everyday things happening around me.

I didn’t know that taking something from the back of a shelf in the fridge would leave me on my knees, unable to close the door of the fridge, because I couldn’t move my arm because I was so utterly exhausted.

I didn’t know that, when I did manage to speak, it would rarely be louder than a hoarse whisper. Neither did I know that just three or four words could rob me of breath for more than a minute.

I didn’t realise how much effort is needed to even listen to another person. If someone says more than a few words, or speaks at the wrong speed, I have no hope of keeping up with them and, because my brain is so ‘foggy’ I can’t even guess what they were talking about.

I didn’t realise that being so worn out would make me so crotchety. It is easy to become sorely frustrated when the person I am speaking to hasn’t anticipated exactly what I wanted to say. Don’t these people understand that they are supposed to know what I am too exhausted to be able to even think? No, they don’t understand – why should they?

I didn’t know that I could be burning hot and sweating profusely, whilst my fingers and toes were frozen to the core. Nor did I know that the situation could change so quickly so that my body was desperately cold and my fingers and toes swollen and sore because they had heated up too quickly.

I didn’t know how desperate I would feel because of my complete lack of energy. I used to think that I knew a bit about being tired. Hah! In the words of a character from one of my all-time favourite TV programmes (Hogan’s Heroes): “I know noth-ing!”

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About Bossymamma

Bossymamma's Fibro Diary charts how I feel and how I cope with Fibromyalgia and the effects it has on me and my life. Writing it helps me and, maybe, reading it will help someone else. Bossymamma's Ramblings is exactly that! It may be me chuntering on about life. It could be a short story I've written. You never know, it might even be a poem! Little by Little by Bossymamma is about all things crafty.
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3 Responses to Well, I Didn’t Know That!

  1. Pingback: Well, I Didn’t Know That! « Bossymamma's Ramblings

  2. z4zed says:

    Acknowledging your horror and wishing there was something I could do.

    Like

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